It seems today random suckers have fallen from the sky. Where the heck they have come from, I have no idea. But G has found about three today. I have to get on my other kids about the severity of leaving suckers or any food around the house. It’s a constant struggle, but that’s another post. Back to the issue at hand, do I:
a.) let her have the sucker because hey, it’s just a sucker
b.) take this last one she just gave me and deal with another meltdown
c.) Do a quick calculation of calories consumed today, scold kids and send them on a mission to find all candy and put it up.
What would you do?
What is Prader-willi Syndrome? That’s a question I asked 22 months ago myself as I heard the doctors diagnosis of my beautiful baby limp laying in the NICU. So here it is.. defined mom style (I’m not a scientist or doctor) Prader-Willi Syndrome (PWS for short) is a rare genetic disorder effecting the 15th chromosome. This defect is totally random, it’s nothing any parent did or didn’t do, in fact it only effects 1-15,000. In the womb my little girl didn’t move around to much. I remember having to go in every week for a non-stress test and ultrasounds to make sure her diaphragm was moving because she hardly moved at all compered to her brother and other sisters who I think were training to be ninjas! At birth infants have very low muscle tone. So low that she couldn’t suck, breathe and swallow at the same time, which led to our next diagnosis…..failure to thrive.